Support Sheet

TITLE 39 HEALTH AND SAFETY CHAPTER 99 DOWN SYNDROME DIAGNOSIS INFORMATION ACT 39-9904. support sheet. (1) The department shall create an up-to-date, evidence-based support sheet about Down syndrome that has been reviewed by medical experts and the Idaho Down syndrome council. The support sheet shall be provided at the time of diagnosis or when an ultrasound or test detects a high likelihood of Down syndrome. The support sheet shall be readily accessible and include the following: (a)  A clinical course description of Down syndrome, including possible physical, developmental, educational, and psychosocial outcomes; (b)  Options available for treatment and therapy for conditions related to Down syndrome; (c)  Life expectancy for individuals with Down syndrome; and (d)  Contact information for nonprofit Idaho Down syndrome organizations that provide information and support services for caregivers, including first-call programs and information hotlines specific to Down syndrome, resource centers, and other education and support programs for Down syndrome. (2)  The department shall post the information required in this section on its website and shall include an information support sheet, in a print-friendly format, to be delivered by health care practitioners to parents as prescribed in section 39-9903 , Idaho Code. (3)  The department shall ensure that the information on the support sheet required in this section is culturally and linguistically appropriate for caregivers. (4)  A Down syndrome organization may request that the department include the organization’s informational material and contact information on the department’s website. The department may add the information to the website upon request. (5)  The department shall meet annually with representatives of the Idaho Down syndrome council to ensure the information in the support sheet that is made available by the department is current.